5th CORBEL Medical Infrastructure-Users Forum (MIUR)

The 5th CORBEL Medical Infrastructure/Users Forum (MIUF), to be held on 15 October 2018 in Paris, will be held to promote close collaboration, at the pan-EU level, between medical research communities, funding bodies, and medical research infrastructures.

In particular, its mission consists of promoting the establishment of pan-European scientific communities, providing the scientific content and access to patients; clearly defining the respective roles of infrastructures vs. scientific communities, avoiding gaps, overlaps and fragmentation ; capturing the needs of the scientific communities and of the funders in terms of infrastructure services ; and of ensuring the appropriate development and deployment of these services by one or multiple research infrastructures.

The October 2018 MIUF meeting is intended to discuss:

• structuring of medical research communities at the pan-European level
• emerging needs of medical research projects in the context of the big data and personalised / stratified medicine approach
• challenges raised in terms of development and deployment of data services

Meeting venue: Sorbonne Université – Campus Pierre et Marie Curie, 4 place Jussieu, PARIS

Programme

10:30 Registration & coffee

11:00 Introduction (J. Demotes)

11:10 Structuring medical research communities at the pan-European level

• ECRAID – European Clinical Research Alliance on Infectious Diseases (H. Goossens)
• EBRA – European Brain Research Area (M. Dorlöchter)
• TRANSVAC2 - European Network of Vaccine Research and Development (O. Leroy)
• C4C – Conect4children (C. Giaquinto)
• European Joint Programme Rare Diseases (D. Julkowska)

12:45 Lunch

13:45 New models for medical research in Europe: success stories

• Organic bioelectronics sensors for Point-of-Care: the ENM III project AMI (F. Biscarini)
• Image analysis and machine learning (S. Klein)
• A virtual research environment for structural biology (tbc)
• Mouse model use case – INFRAFRONTIER (tbc)
• Bridging the academia-industry divide with cutting-edge science: a case study (B. Kuhnast)

15:00 New approaches in personalised medicine and patient stratification

• R-Link: Optimizing response to Lithium treatment through personalized evaluation of individuals with bipolar I disorder (F. Bellivier)
• ImmunAID - Immunome project consortium for AutoInflammatory Disorders (B. Fautrel)
• NECESSITY - NEw Clinical Endpoints in primary Sjögren’s Syndrome: an Interventional Trial based on stratifYing patients (J-E. Gottenberg)

16:00 Coffee break

16:30 Data sharing and reuse

• Multimodal data management: TraIT (J-W. Boiten)
• Sharing and reuse of clinical trial data (C. Ohmann)
• Reuse of national health database for cohort follow-up: CONSTANCES (M. Zins)
• Sensitive medical research data in the EOSC-Life project (J. Demotes)

17:45 Round table discussion

• Distribution of roles between pan-European scientific communities and pan-European research infrastructures
• Role of funders in the pan-European structuring and multinational projects
• Reuse of health data for observational and interventional research
• Other

18:30 End of the meeting

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